europacolon as an organisation would encourage colorectal cancer patients to consider taking part in a clinical trial. Research into colorectal cancer is vital if we are to impact on the disease. Clinical trials aim to improve survival outcomes for patients and most importantly to maintain quality of life. europacolon would urge patients considering a clinical trial to discuss all options with their consultant, nurse and family members.

Patient Partner - Identifying the needs of Patient Partnering in Clinical Research

The aim of the project is to identify patients' needs for partnership in clinical trials. The project is a collaboration of the Dutch Genetic Alliance, The European Genetic Alliances Network, The Genetic Interest Group and the European Forum of Good Clinical Practice and covers all disease areas in its objectives. The main aim of the project is to open up dialogue between patient organisations, the pharmaceutical industry and academia on how patient organisations can become more equal partners in clinical trials and clinical research. It is intended that eventually this will lead to practical guidelines on how this can be made possible. The project features an inventory of current best practices, regional and European wide multi-stakeholder workshops and a European wide forum for patient organisations who want to exchange their views on the topic of partnering in clinical trials and research (ENPCR).

More information on the project and opportunities to get involved in its activities can be found on www.patientpartner-europe.eu



Europacolon would like to thank The U.S. National Library of Medicine (NLM) and ClinicalTrials.gov.

Useful links:
www.clinicaltrials.gov
www.apps.who.int/trialsearch


For European trials:
www.controlled-trials.com